Monday, July 27, 2015

Celebrating #ADA25 and the #SpecialOlympicsWorldGames

July 26, 2015 marked the 25th anniversary of the signing of the American's with Disabilities Act.




The ADA was certainly landmark civil rights legislation.  It put us on a path towards a more inclusive nation.  It took us a giant step closer to fulfilling the promise of equal opportunity.

Equal Access.  Equal Opportunity.  These are the cornerstones of what the ADA is about, what is means to the many Americans living with disabilities.  And isn't equality the most fundamental of our values as Americans?  Isn't equal opportunity the promise that we are all given; the promise that we all collectively must work to ensure is fulfilled?

Each day in my work I see examples of how far we still have to go to become a truly inclusive society where access and opportunity truly are equal.  The reality is that children are still segregated away from their non-disabled peers because of their disabilities.  The reality is that our schools and our courts have accepted standards that lower the expectations for students with disabilities to such a minimal and basic standard that many will not be granted the same "opportunity" as their non-disabled peers - the opportunity for high quality education with rigorous standards and expectations that prepares them to be competitive in further education and careers.  The reality is that children with disabilities are still denied access.

I also know that we have a long ways to go towards inclusiveness in contexts beyond our school systems.  The employment gap between those without disabilities and those with disabilities is still unacceptably large, and we are not doing enough to address that.  While we have laws to ensure access in public accommodations, many with disabilities still struggle to access places and events and all of those things that give us a quality of life on the same level as those without disabilities.

But with all of that being the reality, we have much to celebrate on this day as we reflect back on the passage of the ADA.  We have come far, and this landmark legislation was an important and necessary moment in that journey.

I only truly understood how important basic access could be once I was diagnosed with Fibromyalgia and I myself began to live with a chronic, disabling condition.  Things that I took for granted before were now more difficult - sometimes even seeming impossible.  Every time that I go to Disneyland and receive the accommodations that are necessary to ensure that I can actually enjoy the visit; every time I have to use a wheelchair to make it through an airport during travel without collapsing from fatigue and pain, every time I park in a disabled parking space at Target so that I can actually manage to make it all the way to my car after fatigue-inducing shopping trips for essentials, every time I can walk up a ramp when I can't handle the stairs... these are the times I am grateful that we have the ADA and that we live in a country that demands equal access.  Implementation of the ADA is not perfect, and those of us who rely on accessibility being available certainly run into situations where someone is negative about it or where something doesn't really comply with the rule.  Our society is not perfect, we are not yet truly inclusive as we should be, but we are closer to it because of the ADA, and for that - for myself and for those I represent - I am personally grateful.

On that Sunday, July 26th, as our nation marked the anniversary of this important moment in the history of the disability rights movement, Mandy and I, along with a friend and another co-worker, spent the day at the Special Olympics World Games here in Los Angeles.  


What an amazing experience it was to spend the day cheering on the Special Olympic Athletes!  When I reflect on what the ADA means in our society today and on what we are still striving for as disability rights activists - inclusion, acceptance, the right to participate in society - the Special Olympics is such a positive example of those things.  The Special Olympics promotes a vision of a world that embraces unity, dignity, achievement, acceptance, and inclusion.  The experience of being a fan in attendance is truly amazing.  In my everyday "world" immersed in the work of special education advocacy, I too often experience conversations and situations that are focused on the needs and the deficits and the inabilities of the students.  The games showcase the abilities and achievements of the athletes.  I too often see evidence of lowering expectations for students with disabilities.  The games teach us not to accept limits.  "Brave has no limits" was a slogan seen everywhere we went that day, and it was perfect.



As we watched the Volleyball games, we learned about the initiative for "Unified Teams" that is currently promoted throughout the world by the Special Olympics.  While the "traditional" teams competing were comprised only of persons with disabilities, the "Unified Teams" were comprised of a combination of those with disabilities and those without.  I heard (but missed seeing for myself) that the softball teams had several celebrities participating even.  Unified Teams promotes inclusion - it builds a program where athletes and participants are not separate or segregated but are all participating together, and that is a beautiful thing.  Because ultimately, it is our life experiences that give us the ability to learn acceptance - and truly becoming inclusive as a society doesn't just mean that we allow access - it must mean that we all learn to accept one another.



And I think that what I love the most about the work that the Special Olympics organization does is that they focus on truly promoting inclusion.  By bringing forth and promoting awareness about intellectual disabilities and by building events and activities that are accepting of all people equally, the Special Olympics is working to make us the society we are meant to be - pushing us to fulfill that elusive promise of equality.




Friday, July 24, 2015

Training for Special Education Advocates on Advocacy Skills!

Join Mandy Favaloro and Carrie Watts this coming Tuesday as they present a live webinar training for the Council of Parent Attorneys and Advocates (COPAA)

The training will focus on enhancing the skills of special education advocates related to issue-spotting and case analysis.  This 75 minute webinar is offered as part of COPAA's "Parent Rights and Advocacy Strategies for IEP Meetings" Webinar Series.  The Series includes a variety of presentations related to the rights of parents of students with disabilities under the procedural safeguards of the Individuals with Disabilities Education Act and specific strategies for special education advocates and attorneys working to protect those rights.

Mandy and Carrie have presented a variety of trainings and presentations on topics related to special education law and advocacy in other webinars and live events.  They like to focus their trainings on how advocates can help to protect parents' right to meaningful participation in the IEP process, which is the cornerstone of the IDEA.  Parent participation is often thwarted by the failure of the school district to meet its procedural obligations and by decision-making on the part of districts that excludes parents from the process and ignores their inputs and concerns.  Special education advocates have an important role in helping parents make sure that their concerns and requests are clearly stated, and honing such skills as issue-spotting can help an advocate become more effective in their work.  A2Z's team believes in zealous advocacy on behalf of its clients, and we work within the community to help parents and advocates learn to become zealous advocates for all students with disabilities.  

Here is more information about the webinar:
S.5 Issue-Spotting for Advocates: An Overview of How to Analyze a Client's Case for Effective Advocacy
Tuesday, 7/28/15, 2:00-3:15 ET
Description: Because issue-spotting is closely tied with understanding laws and regulations, it may be assumed that it is a skill left only to attorneys. However, advocates must understand how to issue-spot in order to be effective in their advocacy. Advocates are charged with helping parents make informed decisions and with articulating their clients’ concerns and desires. By learning how to review data and documents - not just for facts and information about a student’s needs, but also for spotting potential issues that may exist - advocates will be better able to assist their clients with formulating sound positions for what they are seeking and to effectively communicate on behalf of their clients.
Register on COPAA's website here:

For information about other trainings provided by the attorneys and advocates at A2Z, go to this link:

Wednesday, July 15, 2015

A Mother's Story, by Jane DuBovy

Parents:
  • Is your child being called “lazy” by their teachers?
  • Does your child have friends at school?
  • How many birthday parties is your child being invited to?
  • Do your child’s teachers say your child is “stupid?”
  • Do you spend hours each night fighting with your child doing homework?
  • Does your child come home from school and just “melt down?”
  • Have you tried to talk to the school about your child’s behaviors?
  • Are you scared for your child’s future?
  • Do you feel isolated because your child doesn’t “fit in” with other children their age?
  • Does the school make you feel like you’re a “bad” parent?
  • Does the community make you feel like you’re a “bad” parent?


I’ve been through all of this with my son.  Starting when he was about 2.5 years old his behavior changed. He was sensitive to noise and lights.  He lost his intelligible speech. He couldn’t be close to other kids without withdrawing or screeching in a high pitch voice.  He couldn't go into stores because of all the stimuli, such as lights and sounds of people.   I was scared for him and didn’t know what had happened to my delightful beautiful funny boy.  The doctor wasn’t helpful.  I didn’t know where to turn to find out what was wrong.

Finally, a friend who happened to be a child psychologist, told me to have my son assessed by a speech specialist.  I didn’t even realize that there were speech therapists for children. I didn’t know where to look to find one who was competent.  This was 17 years ago and the internet wasn’t an option. After asking around I found one.  After her assessment of him what I learned was scary.  She suspected Autism.  Again, 17 years ago that possibility was very scary. I had known about Autism but it was from the dark ages.  Children lost to their own world, refrigerator mothers and other ridiculous theories.  Institutionalization  was the only end result.  My fear pushed me to find help.

I was introduced to UCLA and the NPI program for children with Autism.  Dr. B.J. Freeman confirmed the diagnosis and recommended this intensive 8 hour per day program.  The assessments and therapies provided included Occupational Therapy (OT), Physical Therapy (PT), Recreational Therapy (RT), Language and Speech (LAS), Behavior intervention, Academic preparation and Social Skills (SS).  In addition, he was going to be part of research regarding the development of  “joint attention” in children with Autism.  I had no clue what all of this was.  I began my education in learning how these therapies could help my child.  The first day I left my child at this program which was conducted behind locked doors at the Neuropsychiatric Institute I broke down and cried.  What was going to be in store for my child? Am I doing the right thing?

This program was a life saver for him and me.  They provided me with parent training, information and support. They helped toilet train my child, introduce him to sharing with other children, finding his speech, learning how to play, de-sensitizing him to textures, learning to coordinate his fine and gross motor skills and start to find his way back to “typical.”

After 10 weeks of this program (which was very expensive but luckily good insurance covered the cost) I learned that the next step was to contact my school district, Los Angeles Unified, to assess my child for services.  I was shocked! I didn't even realize that school districts provide anything to children who were not attending school or at least old enough to attend school.  When I learned that starting at age 3 the district was liable to provide educational support to my child I was ready to hop on that train.

I took a letter to my local elementary school, Marquez ES, asking for assessments in all areas of suspected disability.  I wouldn't have known what those areas were until my parent education at the UCLA NPI program.  I also didn't realize how long it would take for this assessment process.  I was lucky, the assessment plan came right away and the assessments and an IEP meeting  were conducted within the statutory time frame of 60 days.  (By the way I had no idea what an "IEP" was)

I thought that with the wonderful assessments and reports from the UCLA specialists the District would not have to conduct all the assessments.  Again, I learned that I was very ignorant of this process.  The District did review the assessments but it did not accept the recommendations by these autism specialists.  I was shocked to hear the District offer an educational plan that would not address my child's unique needs. (unique is another key word that I learned.  The "I" in IEP stands for individual and that was what each child is entitled to)

What was I supposed to do? The District's offer of "FAPE" (free and appropriate public education) looked nothing like the program recommended by the UCLA team. FAPE is mandated by the federal law called for short IDEA (Individuals with Disabilities Education Act.)  I wouldn't accept anything less than what the experts stated was necessary for my child. I had witnessed the effects of untreated autism through my master's program in psychology (in the 1970's) and I was not going to deny my child whatever it would take to help him.  So I fought.

I know, being a lawyer you would think that this is what I do all the time so what's the big deal? It is a big deal when it's your child your fighting for.  There is no impartiality, no weighing the options, most importantly NO COMPROMISE.  I filed a legal action called a due process complaint.  I didn't know how to do this or what it should contain.  I had to learn all of this and quickly as I felt that each day without appropriate services was a day lost permanently.

Within 30 days or so of filing the due process complaint I attended a mediation with the District.  Again, I was very lucky to have such great support.  I had an advocate from PAI ( Protection and Advocacy now called Disability Rights) who was extremely experienced with the process attend the mediation with me.  I also had the support from my local regional center.  (that's an important resource for parents of children with developmental disabilities funded under the Lanterman Act in California).  I had really knowledgeable people from the District who reviewed all the documentation and listened to my advocates.  My case was settled and my child received all the recommended services.  His preschool program that he ultimately had included enrollment in a typical preschool  5 hours per day, 1:1 trained behavior aide and behavior supervision, private LAS, OT, Social Skills and RT.  He received this program for 3 years and the District paid for it entirely.

Each year I reviewed his program with his private providers and the District at his annual IEP meeting.  The program was tweaked depending on his ever changing needs.  During 4th grade he started experiencing more separation from his peers as the demands for participation in team sports (especially important at that time for boys) were very challenging for him.  We found tennis and that became his life saver. (By the way there is a charity now called Aceing Autism that I fully support.  it is run by an amazing man, Richard Spurling, who combined his love for tennis with his knowledgeIof autism, check it out).

Along the way I had to file a few more lawsuits to insure my child's rights. One more against the District, which actually went to hearing and we won. (This was for RT services)  I think the toughest thing is to sit and listen daily to witnesses talk about your child and then having to testify yourself.  I did not come through this without shedding a few tears.  Another lawsuit was against the regional center for RDI services (relationship development intervention, go to www.rdiconnect.com to learn more of that service). Again, had to go through a trial, but with the wonderful experts we won.  Finally, had to sue the Boy Scouts under the ADA (Americans with Disabilities Act), we settled and I'm forbidden to discuss the settlement but let's just say I'm glad I did it.

Middle school was where the next major challenge occurred. Wow, while middle school is tough for the "typicals" it was impossible for my child.  He knew he couldn't navigate the sophisticated demands of this social domain.  Did I mention that we live on the Westside of Los Angeles County? That is a very aware group of kids and they were not tolerant of anyone who was different.  They weren't bad kids just trying to survive these years themselves and there was no room for the "unique."  Another brief fight with the District and my son was moved to a non-public school (NPS).  He attended a program at this school that specialized in serving the needs of high functioning autistic kids.  This was the right move for him.

He thrived in that environment.  At the time he attended there was a wonderful teacher, a gifted program and a very enlightened and caring principal.  He made friends, discovered a music buddy (my son plays drums)  and even learned about girls.  Although this was the right environment for him there were still the annual IEP meetings and his unique needs continued to change.  At one point he needed a 1:1 behavior aide due to his work avoidance, but that was addressed.  He went to prom (actually he DJ'd at the prom), decided on music as his career choice and, yes GRADUATED!!!
Since that time he has continued to work on music production.  He's attended MI (Musician's Institute) in Hollywood, found a love in the production end of the music business, writes his own music (EDM, not my type of stuff but now I sound like my mother when I brought home a Bob Dylan album) and pursuing his dreams.  He is a work in process.  He continues to have regional center support so "Mom" isn't the "go to" resource for everything. He has a driver's license, a car and a job that he got on his own.

This saga isn't over but did I even think this was possible 17 years ago?  I had entered a dark tunnel, scared, ignorant but determined.  I'm really glad I didn't know all that I would have to do over the next 17 years because it would have seemed overwhelming.  I've been very fortunate to have wonderful supportive people along the way.  I developed such a passion for this area of law that I completely changed my focus from bankruptcy to special education.  I love what I do and not many lawyers can say that after practicing for 34 years (yikes, I can't believe that either).  What I love most about what I do is being there for the parents.  Giving them hope and encouragement.  Yes the times have changed.  The number of children diagnosed as to being on the Autism Spectrum has jumped from 1 in 10,000 to 1 in 64.  I have no explanation for that increase but it doesn't matter to a parent if you have that child that is the "1".  The fight is tougher but still winnable. And it is worth it.  Every day when I have the chance encounter with my child (who is now a 6'2" grown man) I see a miracle and know that it is possible for every parent to see a future for their child that a diagnosis of Autism seemed to curtail.